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AAP Guide for Families of Children with Down Syndrome

The American Academy of Pediatrics (AAP) has developed a special guide to help parents and families of children with Down syndrome. This document focuses on medical topics that affect physical health. Other issues can affect social and school success. While these issues may not require doctors or other medical resources, they are still important issues for children with Down syndrome.

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ACH (Arkansas Children’s Hospital)

Arkansas Children’s Hospital (ACH) is a pediatric hospital with a Level I trauma center in Little RockArkansas. It is among the largest in the United States, serving children from birth to age 21. ACH is affiliated with the University of Arkansas for Medical Sciences and serves as a teaching hospital with the UAMS College of Medicine.[1][2] ACH staff consists of more than 505 physicians, 200 residents, and 4,400 support staff. The hospital includes 356 licensed beds, and offers three intensive care units. The campus spans 36 city blocks and has a floor space of over 1,200,000 square feet (110,000 m2).

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http://www.archildrens.org/

 

ACH Genetics and Metabolic Clinic

The Arkansas Children’s Genetics and Metabolic Clinic provides evaluation of children and adults with birth defects, inherited conditions, metabolic disorders, developmental delay, and autism as well as genetic counseling for relatives.

Contact

Appointments:

Phone: 501-364-4000
Fax: 501-364-1564

Clinic Locations

West Little Rock Clinic
16101 Cantrell Road, Suite 114
Little Rock, AR 72223

Genetics & Metabolic Clinic
519 Latham Drive
Lowell, AR 72745

Genetics & Metabolic Clinic
520 Carson Street
Jonesboro, AR 72401

Medical Director

G. Bradley Schaefer, MD
(501) 364-2971

Note: This clinic is available to your child by physician referral. Talk with your child’s physician and tell him/her you would like to be referred to Arkansas Children’s. Have the doctor contact the Appointment Center to make a referral at 501-364-4000. If your child does not have a regular physician, please call 501-364-4000 and we will be happy to recommend one in your area.

 

http://www.archildrens.org/programs-services/a-to-z-services-list/genetic-disorders/genetics-and-metabolic-clinic

 

Adult Down Syndrome Center | Resource Library

About the Center

The Adult Down Syndrome Center is a primary and specialty healthcare clinic that has served the medical and psychosocial needs of over 6,000 teens and adults with Down syndrome since 1992. As a comprehensive medical resource we provide patients everything from holistic care and support to education and resources in a compassionate, welcoming environment. We also hold events, participate in community outreach and conduct research.

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https://adscresources.advocatehealth.com/

American Academy of Pediatrics – HealthyChildren.org

“The American Academy of Pediatrics (AAP) and its member pediatricians dedicate their efforts and resources to the health, safety and well-being of infants, children, adolescents and young adults.”

“HealthyChildren.org is the only parenting website backed by 67​,000 pediatricians committed to the attainment of optimal physical, mental, and social health and well-being for all infants, children, adolescents, and young adults. Whether you’re looking for general information related to child health or for more specific guidance on parenting issues, you’ve come to the right place. ”

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Dennis Developmental Center

TheDennis Developmental Center (DDC) specializes in the assessment of developmental conditions that result in delayed milestones, inability to communicate effectively, inattention, hyperactivity, impulsivity, learning problems, and poor or atypical social interactions. Evaluation and therapy are also provided for families coping with the stress of chronic developmental disorders or chronic medical illnesses, and with grief and loss concerns.

The DDC coordinates the expertise of developmental pediatricians, nurse practitioners, speech/language pathologists, clinical social workers, clinical psychologists, psychological examiners and when indicated, other clinical specialists.

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http://pediatrics.uams.edu/clinical-programs-affiliates/dennis-developmental-center/

 

The Down Syndrome-Autism Connection

“The Down Syndrome-Autism Connection™ is the only nonprofit organization dedicated solely to co-occurring Down syndrome and autism spectrum disorder (DS-ASD) in the United States.”

“Our mission is to provide education and support to individuals facing the unique challenges caused by co-occurring Down syndrome and autism.”

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http://www.ds-asd-connection.org/

UAMS Genetics Clinic

In our comprehensive Down syndrome clinic at UAMS, medical assessment by our geneticist and family doctor, Kent McKelvey, M.D., is accompanied by a TeamTreatmentTM assessment of each patient’s needs regarding physical therapy, social work, behavior and diet. UAMS provides individualized care, no matter how severe or mild the condition. Because of challenges in diagnosing complex physical and behavioral problems, extra time is set aside to ensure that our Down syndrome patients receive all the attention they need. And if you live outside the Little Rock area, our doctors will establish a unique health care plan for each patient in partnership with the hometown physician

Contact

Office: 501-526-4020

Location

Freeway Medical Tower
5800 West 10th
6th Floor, Suite 605
Little Rock, AR 72204

uamshealth.com/downsyndrome

What is a Pediatric Specialist?

​Your pediatrician may refer your child to a pediatric specialist for further evaluation and treatment. Pediatric specialists have received more extensive training in their area of practice. Learn more about these “medical subspecialties” here.

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Pediatric Specialists

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