International Resources

Table of Contents

Down Syndrome Education International

“We are an international charity that supports scientific research and delivers evidence-based advice and information to improve outcomes for children with Down syndrome worldwide.

Down Syndrome Education International has been at the heart of educational research and support for young people with Down syndrome for over 30 years. Today, our research, resources and services help people with Down syndrome in over 170 countries achieve more and live more independent and fulfilling lives.

You can find out more about our research, resources and services on the main DSE web site”

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https://www.dseinternational.org/en-us/

Global Down Syndrome Foundation

The Global Down Syndrome Foundation is a public non-profit 501(c)(3) dedicated to significantly improving the lives of people with Down syndrome through Research, Medical Care, Education and Advocacy. Formally established in 2009, Global’s primary focus is to support the Linda Crnic Institute for Down Syndrome, the first academic home in the United States committed solely to research and medical care for people with Down syndrome. Since Down syndrome is the least-funded genetic condition in the United States, fundraising and government advocacy to correct the alarming disparity of national funding for people with Down syndrome is a major goal.

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https://www.globaldownsyndrome.org/

 

Inclusion International

“The international network of people with intellectual disabilities and their families”

Inclusion International is the international network of people with intellectual disabilities and their families advocating for the human rights of people with intellectual disabilities worldwide.  Together they agree on a Statement of Unity (SoU en Español) and are committed to progress towards inclusion International’s vision.

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https://inclusion-international.org/

International Mosaic Down Syndrome Association

From imdsa.org/:

“International Mosaic Down Syndrome Association (IMDSA) is designed to provide support, information and research to any family, individual or professional whose life has been affected by mosaic Down syndrome.

IMDSA provides a variety to helpful services to meet the needs of any individual interested in mosaic Down syndrome.”

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https://www.imdsa.org/

The Down Syndrome Medical Interest Group – UK

This site provides essential information for healthcare professionals on ‘best practice’ medical care for people with Down syndrome in the UK and Ireland. It has been produced by the UK Down Syndrome Medical Interest Group (DSMIG), a network of doctors whose aim is to ensure equitable provision of medical care for all people with Down syndrome in the UK and Republic of Ireland.

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DSMIG – Down Syndrome Medical Interest Group

 

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