DS Organizations

Table of Contents

DS-Connect

DS-Connect® is a powerful resource where people with Down syndrome and their families can:

  • Connect with researchers and health care providers.
  • Express interest in participating in certain clinical studies on Down Syndrome, including studies of new medications and other treatments.
  • Take confidential health-related surveys. These surveys are aimed at better understanding of the health of people with Down Syndrome across their lifespans.

Visit Online

https://dsconnect.nih.gov/

Global Down Syndrome Foundation

The Global Down Syndrome Foundation is a public non-profit 501(c)(3) dedicated to significantly improving the lives of people with Down syndrome through Research, Medical Care, Education and Advocacy. Formally established in 2009, Global’s primary focus is to support the Linda Crnic Institute for Down Syndrome, the first academic home in the United States committed solely to research and medical care for people with Down syndrome. Since Down syndrome is the least-funded genetic condition in the United States, fundraising and government advocacy to correct the alarming disparity of national funding for people with Down syndrome is a major goal.

Visit Online

https://www.globaldownsyndrome.org/

 

International Mosaic Down Syndrome Association

From imdsa.org/:

“International Mosaic Down Syndrome Association (IMDSA) is designed to provide support, information and research to any family, individual or professional whose life has been affected by mosaic Down syndrome.

IMDSA provides a variety to helpful services to meet the needs of any individual interested in mosaic Down syndrome.”

Visit Online

https://www.imdsa.org/

National Down Syndrome Advocacy Coalition

About NDAC

The National Down Syndrome Advocacy Coalition (“NDAC”) is a member service of the National Down Syndrome Congress (“NDSC”). NDAC is a grassroots advocacy service that is designed to educate individuals with Down syndrome, their family members and other allies about policy issues and give them the advocacy tools and techniques they need to effectively engage with their legislators to advocate for change. NDAC aligns with NDSC’s purpose since its founding in 1973: to promote the interests of people with Down syndrome and their families through advocacy, public awareness and information.

Visit Online

https://www.ndsccenter.org/political-advocacy/national-down-syndrome-advocacy-coalition/

NDSC: the National Down Syndrome Congress

The National Down Syndrome Congress (NDSC) is a membership-sustained not-for-profit organization dedicated to an improved world for individuals with Down syndrome. Founded in 1973, we are the leading national resource of support and information for anyone touched by or seeking to learn about Down syndrome, from the moment of a prenatal diagnosis through adulthood. The purpose of the NDSC is to promote the interests of people with Down syndrome and their families through advocacy, public awareness, and information. When we empower individuals and families from all demographic backgrounds, we reshape the way people understand and experience Down syndrome.We have worked tirelessly over the years to foster a network of local and regional groups across the country to reach out and embrace thousands of people with Down syndrome, their families, friends and the professionals who support them. We are the people who believe in our kids, demand their rights and get them affirmed. We are the community who supports them in all they do from infancy to adulthood. We are also people with Down syndrome, working together for a better future.

NDSC Mission and Vision Statements

The mission of the National Down Syndrome Congress is to provide information, advocacy and support concerning all aspects of life for individuals with Down syndrome.

The vision of the NDSC is a world with equal rights and opportunities for people with Down syndrome.

Visit Online

https://www.ndsccenter.org/

 

NDSS: The National Down Syndrome Society

NDSS Mission

The National Down Syndrome Society is the leading human rights organization for all individuals with Down syndrome.

NDSS Vision

The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations and become valued members of welcoming communities.

Visit Online

http://www.ndss.org/

 

The Down Syndrome Medical Interest Group – UK

This site provides essential information for healthcare professionals on ‘best practice’ medical care for people with Down syndrome in the UK and Ireland. It has been produced by the UK Down Syndrome Medical Interest Group (DSMIG), a network of doctors whose aim is to ensure equitable provision of medical care for all people with Down syndrome in the UK and Republic of Ireland.

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DSMIG – Down Syndrome Medical Interest Group

 

The Down Syndrome Medical Interest Group – USA

Members of this DSMIG-USA are professionals from a variety of disciplines who provide care to individuals with Down syndrome and/or their families. This may include physicians, scientists, psychologists, nurses, genetic counselors, educators, therapists, clinic coordinators, and related health professionals. Members may also include individuals who engage in research or health policy relevant to Down syndrome. Most members work in specialized Down syndrome clinics, at academic institutions, university- and community-based medical centers, or private practice. Students, Residents, Fellows and other Trainees are welcome to join.

Visit Online

https://dsmig-usa.org/

 

The Down Syndrome-Autism Connection

“The Down Syndrome-Autism Connection™ is the only nonprofit organization dedicated solely to co-occurring Down syndrome and autism spectrum disorder (DS-ASD) in the United States.”

“Our mission is to provide education and support to individuals facing the unique challenges caused by co-occurring Down syndrome and autism.”

Visit Online

http://www.ds-asd-connection.org/

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