“You may have just heard these words. Whether you are awaiting your child’s arrival or your baby has just been born, a new or potential diagnosis can seem overwhelming.
Let us help. Let us provide resources and education. Let us connect you to other parents who have been in your shoes.”
Members of this DSMIG-USA are professionals from a variety of disciplines who provide care to individuals with Down syndrome and/or their families. This may include physicians, scientists, psychologists, nurses, genetic counselors, educators, therapists, clinic coordinators, and related health professionals. Members may also include individuals who engage in research or health policy relevant to Down syndrome. Most members work in specialized Down syndrome clinics, at academic institutions, university- and community-based medical centers, or private practice. Students, Residents, Fellows and other Trainees are welcome to join.
This website provides high-quality resources for families expecting little ones with Down Syndrome.
“The Down Syndrome-Autism Connection” is the only nonprofit organization dedicated solely to co-occurring Down syndrome and autism spectrum disorder (DS-ASD) in the United States.”
“Our mission is to provide education and support to individuals facing the unique challenges caused by co-occurring Down syndrome and autism.”
DS-Connect® is a powerful resource where people with Down syndrome and their families can:
The Global Down Syndrome Foundation is a public non-profit 501(c)(3) dedicated to significantly improving the lives of people with Down syndrome through Research, Medical Care, Education and Advocacy. Formally established in 2009, Global’s primary focus is to support the Linda Crnic Institute for Down Syndrome, the first academic home in the United States committed solely to research and medical care for people with Down syndrome. Since Down syndrome is the least-funded genetic condition in the United States, fundraising and government advocacy to correct the alarming disparity of national funding for people with Down syndrome is a major goal.
https://www.globaldownsyndrome.org/
From imdsa.org/:
“International Mosaic Down Syndrome Association (IMDSA) is designed to provide support, information and research to any family, individual or professional whose life has been affected by mosaic Down syndrome.
IMDSA provides a variety to helpful services to meet the needs of any individual interested in mosaic Down syndrome.”
This research organization is dedicated to the study and better understanding of Down Syndrome and its many effects. Their website has many useful resources for families.
About NDACThe National Down Syndrome Advocacy Coalition (“NDAC”) is a member service of the National Down Syndrome Congress (“NDSC”). NDAC is a grassroots advocacy service that is designed to educate individuals with Down syndrome, their family members and other allies about policy issues and give them the advocacy tools and techniques they need to effectively engage with their legislators to advocate for change. NDAC aligns with NDSC’s purpose since its founding in 1973: to promote the interests of people with Down syndrome and their families through advocacy, public awareness and information.
https://www.ndsccenter.org/political-advocacy/national-down-syndrome-advocacy-coalition/
The National Down Syndrome Congress (NDSC) is a membership-sustained not-for-profit organization dedicated to an improved world for individuals with Down syndrome. Founded in 1973, we are the leading national resource of support and information for anyone touched by or seeking to learn about Down syndrome, from the moment of a prenatal diagnosis through adulthood. The purpose of the NDSC is to promote the interests of people with Down syndrome and their families through advocacy, public awareness, and information. When we empower individuals and families from all demographic backgrounds, we reshape the way people understand and experience Down syndrome.We have worked tirelessly over the years to foster a network of local and regional groups across the country to reach out and embrace thousands of people with Down syndrome, their families, friends and the professionals who support them. We are the people who believe in our kids, demand their rights and get them affirmed. We are the community who supports them in all they do from infancy to adulthood. We are also people with Down syndrome, working together for a better future.
The mission of the National Down Syndrome Congress is to provide information, advocacy and support concerning all aspects of life for individuals with Down syndrome.
The vision of the NDSC is a world with equal rights and opportunities for people with Down syndrome.
ADSA is a member of the Global Down Syndrome Foundation and the National Down Syndrome Society (NDSS). We are also an affiliate of National Down Syndrome Congress (NDSC) as well as members of Down Syndrome Affiliates in Action (DSAIA) and the Little Rock Chamber of Commerce.
The NDSS National Advocacy & Public Policy Center supports the mission of NDSS to be the leading human rights organization for all individuals with Down syndrome by advocating for federal, state and local policies that positively impact people with Down syndrome across the country.
https://www.ndss.org/advocate/national-advocacy-public-policy/
The National Down Syndrome Society is the leading human rights organization for all individuals with Down syndrome.
The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations and become valued members of welcoming communities.
This site provides essential information for healthcare professionals on ‘best practice’ medical care for people with Down syndrome in the UK and Ireland. It has been produced by the UK Down Syndrome Medical Interest Group (DSMIG), a network of doctors whose aim is to ensure equitable provision of medical care for all people with Down syndrome in the UK and Republic of Ireland.
DSMIG – Down Syndrome Medical Interest Group
Down Syndrome International (DSi) is a UK based international charity, comprising a membership of individuals and organisations from all over the world, committed to improving quality of life for people with Down syndrome worldwide and promoting their inherent right to be accepted and included as valued and equal members of their communities.
Arkansas Down Syndrome Association promotes and enhances the overall health and well-being of people with Down syndrome and their families.
Learn more about ADSA >
