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The American Academy of Pediatrics (AAP) has developed a special guide to help parents and families of children with Down syndrome. This document focuses on medical topics that affect physical health. Other issues can affect social and school success. While these issues may not require doctors or other medical resources, they are still important issues for children with Down syndrome.Your pediatrician may refer your child to a pediatric specialist for further evaluation and treatment. Pediatric specialists have received more extensive training in their area of practice. Learn more about these “medical subspecialties” here.
Arkansas Children’s Hospital (ACH) is a pediatric hospital with a Level I trauma center in Little Rock, Arkansas. It is among the largest in the United States, serving children from birth to age 21. ACH is affiliated with the University of Arkansas for Medical Sciences and serves as a teaching hospital with the UAMS College of Medicine.[1][2] ACH staff consists of more than 505 physicians, 200 residents, and 4,400 support staff. The hospital includes 356 licensed beds, and offers three intensive care units. The campus spans 36 city blocks and has a floor space of over 1,200,000 square feet (110,000 m2).
The Arkansas Children’s Genetics and Metabolic Clinic provides evaluation of children and adults with birth defects, inherited conditions, metabolic disorders, developmental delay, and autism as well as genetic counseling for relatives.
Appointments:
Phone: 501-364-4000
Fax: 501-364-1564
West Little Rock Clinic
16101 Cantrell Road, Suite 114
Little Rock, AR 72223
Genetics & Metabolic Clinic
519 Latham Drive
Lowell, AR 72745
Genetics & Metabolic Clinic
520 Carson Street
Jonesboro, AR 72401
Note: This clinic is available to your child by physician referral. Talk with your child’s physician and tell him/her you would like to be referred to Arkansas Children’s. Have the doctor contact the Appointment Center to make a referral at 501-364-4000. If your child does not have a regular physician, please call 501-364-4000 and we will be happy to recommend one in your area.
The Advocate Medical Group is a primary and specialty healthcare clinic that has served the medical and psychosocial needs of over 6,000 teens and adults with Down syndrome since 1992. As a comprehensive medical resource we provide patients everything from holistic care and support to education and resources in a compassionate, welcoming environment. We also hold events, participate in community outreach and conduct research.
“The American Academy of Pediatrics (AAP) and its member pediatricians dedicate their efforts and resources to the health, safety and well-being of infants, children, adolescents and young adults.”
“HealthyChildren.org is the only parenting website backed by 67,000 pediatricians committed to the attainment of optimal physical, mental, and social health and well-being for all infants, children, adolescents, and young adults. Whether you’re looking for general information related to child health or for more specific guidance on parenting issues, you’ve come to the right place. ”
This useful article is full of information on health care.
“Down syndrome is a common condition caused by having “extra” copies of genes on the 21st chromosome. Those extra genes change development during pregnancy and continue to have effects after birth and throughout a person’s life.”
This database of clinical providers with specialty services available for patients with Down syndrome was created by NDSS in partnership with its Clinical Advisory Board. All information included in this database was provided by the institutions themselves through a survey conducted by NDSS.
This database was created as an informational tool, not a referral, rating or medical service.
TheDennis Developmental Center (DDC) specializes in the assessment of developmental conditions that result in delayed milestones, inability to communicate effectively, inattention, hyperactivity, impulsivity, learning problems, and poor or atypical social interactions. Evaluation and therapy are also provided for families coping with the stress of chronic developmental disorders or chronic medical illnesses, and with grief and loss concerns.
The DDC coordinates the expertise of developmental pediatricians, nurse practitioners, speech/language pathologists, clinical social workers, clinical psychologists, psychological examiners and when indicated, other clinical specialists.
http://pediatrics.uams.edu/clinical-programs-affiliates/dennis-developmental-center/
“The GLOBAL Medical Care Guidelines for Adults with Down Syndrome provide first of-kind, evidence-based medical recommendations to support clinicians in their care of adults with Down syndrome”
Click the link below to see Growth Charts for Children with Down Syndrome from the CDC
People with Down syndrome are at increased risk for certain health problems compared to the general population. This section offers information about these health issues.
Watch the following webinar from EDSA
Webinar [IN ENGLISH]: Supporting Positive Behavior in Children and Teens with Down Syndrome
Read the Healthy Bodies Toolkit for Boys
“Puberty can be a stressful and confusing time, especially for you and your son with an Intellectual and/or Developmental Disability (I/DD).”
Read the Healthy Bodies Toolkit for Girls
“Puberty can be a stressful and confusing time, especially for you and your daughter with an Intellectual and/or Developmental Disability (I/DD).”
Watch the following webinar about puberty
Arkansas Down Syndrome Association promotes and enhances the overall health and well-being of people with Down syndrome and their families.
Learn more about ADSA >
