ACH (Arkansas Children’s Hospital)

Arkansas Children’s Hospital (ACH) is a pediatric hospital with a Level I trauma center in Little RockArkansas. It is among the largest in the United States, serving children from birth to age 21. ACH is affiliated with the University of Arkansas for Medical Sciences and serves as a teaching hospital with the UAMS College of Medicine.[1][2] ACH staff consists of more than 505 physicians, 200 residents, and 4,400 support staff. The hospital includes 356 licensed beds, and offers three intensive care units. The campus spans 36 city blocks and has a floor space of over 1,200,000 square feet (110,000 m2).

Visit Online

http://www.archildrens.org/

 

Wright’s Law

Parents, educators, advocates, and attorneys come to Wrightslaw for accurate, reliable information about special education law, education law, and advocacy for children with disabilities. The Special Ed Advocate is a free online newsletter about special education legal and advocacy topics. Subscribers learn about new cases, articles, seminars and training, special offers on books by Pete & Pam Wright, and other useful information about special education law and advocacy.

Visit Online

http://www.wrightslaw.com/

 

WIC (Women, Infants and Children)

The WIC (Women, Infants and Children) special supplemental nutritional program provides supplemental food for children when they need food high in nutrition for critical growth. The program also provides supplemental nutritional aid for women so that the baby can grow into a strong and healthy adult. The program encourages breastfeeding and provides necessary support for it. In addition to these benefits, the Arkansas WIC program also helps mothers learn about important nutrients and dietary habits so that they can maintain healthy diet for infant and children.

Visit Online

http://www.healthy.arkansas.gov/programs-services/topics/wic

 

First Connections

Early intervention (0-3) under Part C of the Individuals with Disabilities Education Act (IDEA) is First Connections. The Department of Human Services, Division of Developmental Disabilities Services is the “lead agency” with administrative oversight. First Connections provides supports and services for families and their children, birth to age three who have special needs. Research shows that this is a critical time of development in the lives of all children. Families of infants and toddlers with special needs can turn to First Connections for information, support, and services to help them assist their child in reaching his/her potential. First Connections is a state-wide, comprehensive early intervention network of qualified, dedicated professionals here to work directly with your family to custom-design a plan with you to meet your child’s and your family’s needs.

Visit Online

https://dhs.arkansas.gov/dds/firstconnectionsweb/#fc-home

 

AR HIPP

The Arkansas HIPP program is designed to save money for families with high healthcare costs by reimbursing members for the cost of group health insurance provided by an employer or through COBRA. In some cases, members can receive reimbursement for the premium cost of a family health insurance policy. The program also eliminates some out-of-pocket medical expenses for qualifying Medicaid clients.

Visit Online

http://myarhipp.com/general-program-information/

 

TEFRA

Background

Also known as the Katie Beckett option,  TEFRA  is a category of Medicaid that provides care to disabled children in their homes rather than in institutions. To qualify for  TEFRA  benefits, the child must be disabled according to the Supplemental Security Income (SSI) definition of disability and must meet the medical-necessity requirement for institutional care. Children who live in institutions or who receive extended care in institutions are not eligible in the  TEFRA  category. To qualify for  TEFRA  benefits, the child:

  • must be younger than 19
  • cannot have income that exceeds the Long Term Care Medicaid limit
  • cannot have countable resources that exceed $2,000
Parental income and resources are not considered. Only the income and resources of the child are counted. Appropriate medical services must be available to provide care for the child in the home. The estimated cost of care in the home cannot exceed the estimated cost of care for the child in an institution. Children who receive  SSI  but lose coverage intermittently due to fluctuating parental income may be eligible for  TEFRA  benefits in the months they do not receive  SSI .

Applying for TEFRA

TEFRA Fact Sheet

Application Form

Physician Assessment Form

The child’s parent or guardian can apply for  TEFRA  at the  DHS office in the child’s county of residence. Applications also are accepted at Arkansas Children’s Hospital.

 

Medicaid

Medicaid reimburses health care providers for covered medical services provided to eligible needy individuals in certain categories. Eligibility is determined based on income, resources, Arkansas residency, and other requirements.  Covered services also vary among categories.  Categories are summarized under the two headings of “Aged, Blind and Disabled” and “Children and Family”.

Visit Online

http://humanservices.arkansas.gov/dco/Pages/MedicaidEligibility.aspx

 

NDSC: the National Down Syndrome Congress

The National Down Syndrome Congress (NDSC) is a membership-sustained not-for-profit organization dedicated to an improved world for individuals with Down syndrome. Founded in 1973, we are the leading national resource of support and information for anyone touched by or seeking to learn about Down syndrome, from the moment of a prenatal diagnosis through adulthood. The purpose of the NDSC is to promote the interests of people with Down syndrome and their families through advocacy, public awareness, and information. When we empower individuals and families from all demographic backgrounds, we reshape the way people understand and experience Down syndrome.We have worked tirelessly over the years to foster a network of local and regional groups across the country to reach out and embrace thousands of people with Down syndrome, their families, friends and the professionals who support them. We are the people who believe in our kids, demand their rights and get them affirmed. We are the community who supports them in all they do from infancy to adulthood. We are also people with Down syndrome, working together for a better future.

NDSC Mission and Vision Statements

The mission of the National Down Syndrome Congress is to provide information, advocacy and support concerning all aspects of life for individuals with Down syndrome.

The vision of the NDSC is a world with equal rights and opportunities for people with Down syndrome.

Visit Online

https://www.ndsccenter.org/

 

NDSS: The National Down Syndrome Society

NDSS Mission

The National Down Syndrome Society is the leading human rights organization for all individuals with Down syndrome.

NDSS Vision

The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations and become valued members of welcoming communities.

Visit Online

http://www.ndss.org/

 

UAMS Genetics Clinic

In our comprehensive Down syndrome clinic at UAMS, medical assessment by our geneticist and family doctor, Kent McKelvey, M.D., is accompanied by a TeamTreatmentTM assessment of each patient’s needs regarding physical therapy, social work, behavior and diet. UAMS provides individualized care, no matter how severe or mild the condition. Because of challenges in diagnosing complex physical and behavioral problems, extra time is set aside to ensure that our Down syndrome patients receive all the attention they need. And if you live outside the Little Rock area, our doctors will establish a unique health care plan for each patient in partnership with the hometown physician

Contact

Office: 501-526-4020

Location

Freeway Medical Tower
5800 West 10th
6th Floor, Suite 605
Little Rock, AR 72204

uamshealth.com/downsyndrome